39 тысяч подписчиков
649 видео
10-17-24 Good Bad Things: FSHD University with Danny Kurtzman and Shane Stanger
FSHD University: BetterLife FSHD with Amanda Hill
FSHD University: Better Nutrition for FSHD
6 20 24 FSHDUniversity Avidity Fortitude Update
FSHD University: Project Mercury Updates with Josie Godfrey and Amanda Hill
FSHD University: Family Communication with Dr. Jennifer Egert, Patients, and Family Members
Finding Reliable Health Information with Tina Griffin, FSHD University
FSHD University: Breathing with FSHD with Andrea Klein
Treating FSHD: A Broader View with Nicol Voermans, MD PhD, and Nathaniël Rasing, MD
FSHD University Annual Drug Update
MOVE and MOVE+ FSHD Update with Michaela Walker
FSHD Experiences: Insights from Europe with Megan McNiff
Dr. Rita Perlingeiro on Stem Cell Research and FSHD
Webinar with John Bach, MD, on noninvasive ventilatory support for FSH muscular dystrophy
FSHD 101: Genetics, diagnosis, and care standards, with John Day MD PhD
Feeling Fit with FSHD: Why Exercise? September 2023
FSHD Radio - World FSHD Day: Raj Badiani, FSHD UK
Care Connector - What's new in BetterLife FSHD?