Susan Howell, MS, MBA, CGC & Kayla Molison, BA - Initial Data from the GALAXY Registry
Webinar recorded 8/23/2023
Initial Data from the GALAXY Registry: Generating Advancements in Longitudinal Analysis in X & Y Chromosome Variations
The GALAXY Registry is a clinical research database of validated medical information of individuals with X & Y variations. By collecting and analyzing medical data from a large number of individuals with these relatively rare conditions, we aim to improve our understanding of X & Y variations, enhance treatment options, and develop research initiatives for future studies.
In this webinar, we provide an update on the initial data within the GALAXY Registry, including a summary of the demographic and diagnostic information of the current enrolled participants.
You can enroll yourself/your child into GALAXY online without coming into clinic. Eligibility and consent information: https://redcap.ucdenver.edu/surveys/?...
More resources and support for X & Y chromosome variations: https://genetic.org
Find a clinic near you: https://genetic.org/im-adult-looking-...
Find a support group near you or online: https://genetic.org/im-adult-looking-...
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