Conversation w/ Samantha Elandary, Founder and CEO of Parkinson Voice Project
Karl Robb interviews Samantha Elandary, Speech-Language Pathologist, Founder and CEO of Parkinson Voice Project (http://www.ParkinsonVoiceProject.org).
Samantha founded the Parkinson Voice Project in 2005 with a strong determination and spirit to help those living with Parkinson's disease improve their voice. Karl has a candid and personal conversation with Samantha, which includes the following topics:
Founding of Parkinson Voice Project: 1:50
Helping People with Parkinson's Worldwide: 3:30
Why the name Parkinson Voice Project: 4:00
Training Speech-Language Pathologists worldwide: 4:30
University Speech-Language Pathology clinics: 5:00
Samantha's Journey from Speech-Language Pathologist to Founder of Parkinson Voice Project: 5:30
Samantha's background and training: 6:00
Support from the Parkinson's community 7:00
Parkinson Voice Project as a non-profit: 8:00
Teletherapy, COVID-19, and training speech therapists online: 8:30
How is Parkinson Voice Project different from other programs: 9:20
What is Speaking with INTENT? 10:00
Empowering people with Parkinson's Disease to improve their speech: 11:00
What is the LOUD CROWD? 11:40
Therapy Materials: 12:00
Training for Speech-Language Pathologists: 13:00
Materials for US and International Speech-Language Pathologists: 13:30
Who is Dr. Daniel R. Boone, mentor and world renowned Speech-Language Pathologist? 14:15
Pay It Forward concept: 17:15
Access to Parkinson Voice Project's online training: 19:45
Finding trained SPEAK OUT Providers: 21:30
LIVE! Daily Speech Exercises via Facebook, YouTube, and ParkinsonVoiceProject.org: 22:30
Recordings of home practice videos: 24:00
Benefits of practicing: 25:00
Research studies on SPEAK OUT!: 26:00
Parkinson Voice Project Fiscal Responsibility and Progress: 27:45
Closing: 28:50
To learn more about Parkinson Voice Project, visit their website at http://www.ParkinsonVoiceProject.org
--Parkinson Voice Project offers LIVE! Daily Speech Exercises online via Facebook, YouTube, and at https://www.parkinsonvoiceproject.org...
Monday - Friday at 10am CDT
--To view recordings of home speech exercise practices, visit via
--Facebook: / parkinsonvoiceproject
--YouTube: / @parkinsonvoiceproject
--Website: http://www.parkinsonvoiceproject.org
To learn more about Karl Robb or read any of his over 450 articles, visit his website http://www.KarlRobb.com.
Karl Robb has had Parkinson’s disease (PD) for over thirty years. With symptoms since he was seventeen years old, Karl was diagnosed at the age of twenty-three. Now fifty-four, he is a Parkinson’s disease advocate, an entrepreneur, an inventor, an author of two books (A Soft Voice in a Noisy World: A Guide to Dealing and Healing with Parkinson’s Disease and Dealing and Healing with Parkinson’s Disease and Other Health Conditions: A Workbook for Body, Mind, and Spirit) with his wife and care partner, Angela Robb. He has blogged for twelve years on his website, ASoftVoice.com. He is a Community Team Member to ParkinsonsDisease.net and is a contributor to PatientsLikeMe.com. Karl is a board member of both the Parkinson Voice Project and Parkinson Social Network based in Virginia. He was an active board member (6 years) and an advocate (18 years) with the Parkinson’s Action Network (PAN).
His blog, ASoftVoice.com, has been recognized six years in a row by Healthline.com as one of The Best Parkinson’s Blogs of 2020, 2019, 2018, 2017, 2016, and 2015! Healthline.com also listed the book A Soft Voice in a Noisy World in their list of Best Parkinson’s Disease Books of 2017! FeedSpot.com has recognized ASoftVoice.com for 2018 and 2017 as a Top 50 Parkinson’s Disease blog. Karl was a blogger for the 2016 World Parkinson Congress in Portland, Oregon. He is a frequent speaker on Parkinson’s disease issues as well as an experienced advocate for Parkinson’s issues throughout the United States. He is also an advisor and consultant on Parkinson’s disease.
In his free time, he is a photographer, constant writer, longtime magician, and a practicing Reiki Jin Kei Do master.
Karl received a Bachelor of Arts degree in English from the University of North Carolina at Chapel Hill. He has been featured by The New York Post, BBC Radio, CBS News, National Public Broadcasting (NPR), The New Republic magazine and NHK World Television, as well as several Washington, D.C., television stations.
You may reach Karl via email at [email protected], on Facebook, or contact him via Twitter @asoftvoicepd.