If You Could Share 1 Thing with Your Neurologist | What Would It Be? | IAES Tuesday Tries |
If You Could Share 1 Thing with Your Neurologist | What Would It Be? | IAES Tuesday Tries | Monthly Support Meeting for Autoimmune Encephalitis Patients & Caregivers
✅IAES’ Tuesday Tries is a monthly Zoom gathering held on the last Tuesday of every month, moderated by Tessa McKenzie, IAES' Chief Resilience Officer. This supportive community brings together Autoimmune Encephalitis (AE) patients and caregivers to celebrate progress, share milestones, and build resilience throughout the healing journey.
🌱 What Is “Tuesday Tries”?
Tuesday Tries promotes a strengths-based approach by “normalizing the try.” Through guided prompts and peer-to-peer conversations, members learn to:
◾Reframe setbacks
◾Celebrate small and big wins
◾Strengthen emotional resilience
◾Build meaningful connections within the AE community
Recently, Tessa asked the group: “If you could share one thing with your neurologist, what would it be?” The answers were so powerful that we created this video to help strengthen communication between AE patients and medical professionals.
🧠 What Is Autoimmune Encephalitis?
Autoimmune Encephalitis (AE) is a group of inflammatory brain diseases marked by severe neuropsychiatric symptoms. Although patients are often misdiagnosed with psychiatric disorders, AE is a neurological condition that requires early recognition and immunotherapy treatment.
✅Common symptoms include:
◾Sudden behavior changes
◾Psychosis or hallucinations
◾Seizures
◾Memory loss & cognitive decline
◾Abnormal movements
◾Autonomic dysfunction
◾Decreased consciousness
AE does NOT respond to antipsychotics, and these medications can worsen the condition. Early diagnosis is critical for improved outcomes.
👩⚕️ Why This Video Matters
Psychiatrists and ER physicians are often the first to see AE patients. This video helps raise
◾awareness about:
◾Recognizing AE red flags
◾Considering autoimmune causes in first-onset psychosis
◾Understanding how early treatment saves lives
💬 Join Tuesday Tries
If you are an AE patient or caregiver, we invite you to register here:
Zoom Registration: https://zoom.us/meeting/register/tJEp...
After registering, you will receive two powerful resilience tools:
👉Growing Your Resilience Organizer
https://autoimmune-encephalitis.org/w...
👉Gratitude Journal
https://autoimmune-encephalitis.org/w...
These resources are helpful for patients, caregivers, and medical professionals looking to better understand the AE journey.
🌍 About the International Autoimmune Encephalitis Society (IAES)
IAES is the only patient- and family-centered non-profit dedicated exclusively to Autoimmune Encephalitis. We provide:
✔Science-based education
✔Expert-reviewed medical information
✔Advocacy and awareness
✔Comprehensive support from diagnosis through recovery
🌐Learn more: http://www.autoimmune-encephalitis.org/
💙Support our mission: https://autoimmune-encephalitis.org/d...
🌟Keywords:
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✨Hashtags:
#AutoimmuneEncephalitis #consciousness #abnormalmovements #memoryloss #seizures #hallucinations #psychosis #IAES #InternationalAutoimmuneEncephalitisSociety #healingjourney #autoimmunedisorders #neurologyeducation #brainhealthawareness #iaes #autoimmunedisease #braininflammation #neuroimmunology #brainhealth
⏱️ Video Chapters / Timestamps
00:00 – Introduction to Tuesday Tries
01:12 – What Tuesday Tries Is About
03:05 – Strengths-Based Healing Approach
05:10 – Why “Normalizing the Try” Matters
07:22 – Patient & Caregiver Reflections
09:18 – Sharing Messages for Neurologists
11:40 – Key Insights From Participants
13:55 – Understanding Autoimmune Encephalitis
16:10 – AE Symptoms & Misdiagnosis Risks
18:25 – Importance of Early Treatment
20:05 – IAES Resources & Tools
22:10 – Closing Message & Invitation to Join
⚠️Disclaimer:
This video is for educational and awareness purposes only. It is not intended to provide medical advice, diagnosis, or treatment. Always consult a qualified healthcare professional regarding any medical concerns, symptoms, or treatment decisions. The experiences shared in this video reflect individual perspectives and may not apply to all patients. IAES does not replace medical care from licensed clinicians.