Experiences of participating in the 100,000 Genomes Project
We talked to 32 people about their experiences of genomics research, in particular their experiences of taking part in the 100,000 Genomes Project. People we interviewed had not yet had results from the project.
The 100,000 Genomes Project is a flagship project that aims to sequence 100,000 whole genomes from NHS patients with rare diseases, and their families, as well as people with common cancers. A few of the people we interviewed took part in earlier pilot studies before being transferred to the main project.