GFPD | 2023 Patient Ambassador Series: Caregiver Self-Care
Catherine McGinty, mother to 2023 Patient Ambassador Patrick, shares the reality of self-care for a Warrior caregiver. This #SelfCareAwarenessMonth be sure to reach out to a caregiver and find ways to help them to partake in self care. Remember, in the event of an emergency on an airplane, they ask that the caregiver put their mask on first. Self-Care is an important piece of caring for your Warrior.
#GFPD #PBDZSD #RareDiseaseAwareness #RareDisease #FindACure
#GFPDisFamily #GFPDisResearch #GFPDisHope #ZellwegerSyndrome #ZellwegerSpectrumDisorder #PeroxisomalDisorder #MedicallyComplexKids
#DBPD #AMACRD #ACOX #shareyourrare #showyourstripes