"Children like these don't live" | Harlequin Ichthyosis
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Dima's skin is red and renews itself every day. According to official data, only three people in Russia suffer from Harlequin ichthyosis.
How to accept that you have a special child? How to care for a fish boy? Is it possible to adapt him to independent life? How do people around him react to him? The heroine of the new video on Kosatkina's YouTube channel will tell you.
Olga's blog: / ol_shuv
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time codes:
00:00 - "Are you going to write a refusal now? You can't live with someone like that"
06:02 - What is ichthyosis? Is it treatable? Is it visible on ultrasound?
09:33 - Acceptance of the diagnosis
14:01 - The ex-husband refused to pay alimony
16:13 - Features of Dima's development
20:53 - Reaction of others
23:58 - Blog
25:57 - How Olya and Dima live
28:14 - Meeting with the ex-husband
29:45 - Plans for the future
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