Patient testimonial: Jonathan, Degos disease and me
Patient Testimonial: Degos Disease and Me
Jonathan is 39 years old, has Degos disease, and is passionate about photography 📸. The first symptoms of the disease were skin lesions, followed by vision problems and digestive issues.
💬 Several diagnoses, such as Crohn's disease or molluscum contagiosum, were considered before Degos disease was diagnosed. Eighteen months passed between the first symptoms and the diagnosis. Discover how Jonathan, over time, managed to cope with the disease and learn to live with it, while maintaining hope for a return to his former life.
A big thank you to Jonathan for his encouraging and optimistic story.
🔗 To learn more about Degos disease, visit our website fai2r.org: https://www.fai2r.org/les-pathologies...
Rare Autoimmune and Autoinflammatory Disease Healthcare Network
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