Patient testimonial: Jonathan, Degos disease and me

Опубликовано: 16 Июль 2026
на канале: Filière de santé FAI²R
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Jonathan is 39 years old, suffers from Degos disease, and is passionate about photography 📸. The first symptoms of the disease were skin lesions, followed by vision problems and digestive issues.

💬 Several diagnoses, such as Crohn's disease or molluscum, were considered before Degos disease was finally identified. It took 18 months from the onset of the first symptoms to reach the diagnosis. Discover how, over time, Jonathan managed to come to terms with the disease, learning to live with it while still holding on to hope of regaining his former life.

A big thank you to Jonathan for his encouraging and optimistic testimonial.

🔗 To learn more about Degos disease, visit our website fai2r.org: https://www.fai2r.org/les-pathologies...


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