Nina Raben in conversation with Tiffany House
Dr Nina Raben, who works at the National Institutes of Health (NIH), talks of her 30 year of dedication to understanding the science behind Pompe disease and its treatments. Her excitement and motivation comes from meeting and listening to patients who she regards as a very well informed community.
Nina also talks of her support for the Ukrainian Pompe community and is impressed by the way the International Pompe community is supporting them.