D-BIFUNCTIONAL PROTEIN DEFICIENCY | The Story of Amelia Shagieva

Опубликовано: 25 Сентябрь 2026
на канале: Благотворительный фонд «Алёша»
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Amelia has a severe neurodegenerative disease, D-bifunctional protein deficiency. Her nerve cells are gradually dying. Children with this diagnosis rarely survive past two years.

But Amelia is already eight. And all these years, she's been able to hold on thanks to her parents' boundless love. They didn't give up on a "hopeless" child; on the contrary, they devoted all their energy to ensuring their daughter's life! And they've achieved so much.

But now Amelia has experienced a growth spurt. She needs a repeat hip surgery—the plates they previously installed have become too small and are simply crushing the child's bones. The treatment is incredibly expensive. There's no way to manage this on your own.

Learn Amelia's story now. And be sure to help her live without pain and constant suffering!

You can donate for Amelia's treatment here —
https://aleshafond.ru/youtube/ameliya...

IMPORTANT! Be sure to like and leave a kind comment so as many people as possible know about this story!
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