Neurofibromatosis Type 1
Neurofibromatosis is a rare genetic disorder which affects 1 out of 4000 people. It mainly impacts the nervous system where usually benign tumors grow along the nervous system. There are many symptoms that derive from people who are affected with NF.
Bone Deformities
Learning Disabilities
High Blood Pressure
Epilepsy
My name is Chuck and I have Neurofibromatosis Type 1. I mainly have the tumors on my head, neck, arms, torso, and legs. I was diagnosed at an early age and over the years the tumors became more pronounced.
I'm starting this channel or series of videos for several reasons.
1. To encourage people who share this condition
2. Research and identify ways to slow down or even reverse the growth of the tumors
3. Build a community of support
Be sure to follow me on my other social media sites:
Facebook:
/ charleskrivers
Instagram:
/ professor.c.k.rivers