The ME/CFS concept is unhelpful
None of the justifications made for embracing the term and concept of 'ME/CFS' hold up. Putting M.E. together with 'CFS' doesn't add to the credibility of 'CFS' -- it just strips M.E. of credibility and scientific legitimacy as well.
This is why 'ME/CFS' articles and studies are even more dangerous in many ways than pure 'psychological CFS' ones. The issue is not that 'ME/CFS' just isn't a very good solution that will not do much good, as many have been arguing. There is so much more than that at stake here. Not only will 'ME/CFS' not help, it can and will make things so much worse. It will make the truth about M.E. even more invisible (or 'inaccessible') by hiding it in plain sight. Make it harder than ever for anyone to separate M.E. out from the vague mess of 'CFS' or for those misdiagnosed as 'CFS' to be receive a correct diagnosis and appropriate treatment, as is their basic right.
The only thing that makes any sense is for us to fight together without compromise to get rid of 'CFS' in name and definition, and to have patients correctly diagnosed with and treated for with whichever illnesses they actually have, including M.E., in a scientific and ethical manner - without interference by financial vested interest groups.
You can help those with M.E. (and those diagnosed with CFS that do not have M.E.) by opposing the 'ME/CFS' concept.
See the www.hfme.org site for more information.