Personal Perspective Panel: Coping with the Marfan Diagnosis
Coping with the Marfan diagnosis at any age can be difficult. In this webinar, which is part of our Marfan Awareness Month program, members of our community share their stories about their diagnosis (or that of a family member) and what helped them cope. The webinar also features a presentation from Jill Hendrickson, MS, MSSW, CGC, a genetic counselor at UF Health Aortic Disease Center, who shares the guidance she gives to patients.
For more information on Marfan syndrome, including programs such as virtual support groups, please visit Marfan.org.
If you have any medical questions, please submit them to our Help & Resource Center at Marfan.org/Ask.