The Beacons: Marion’s Story
Hidradenitis suppurativa (HS) isn’t rare—just rarely talked about. This HS Awareness Week, we want to help change that and are shining a spotlight on members of the HS community who’ve bravely shared their HS stories. They are our Beacons (of light).
The journey to a hidradenitis suppurativa diagnosis can be long. This was the case for HS Beacon Marion, who discusses the waiting, the traveling and the frustration. Marion also talks about the moment she knew her HS symptoms were limiting her at work. Making a bold career change and deciding to make it her mission to advocate for hidradenitis suppurativa and provide support to people with HS into a full-time career, she is retraining as a social media manager working for her local HS patient group.
Share Marion’s story to help raise awareness of hidradenitis suppurativa using #HSAwareness.
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HS is a painful and recurrent inflammatory skin disease. It causes boil-like abscesses that can burst, creating open wounds, often in the most intimate parts of the body, resulting in irreversible scarring. It can take 10 years to get a diagnosis, even though HS affects approximately 1 in 100 people globally.
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