VF Patient Roundtable: Dealing with Vasculitis Cringe Questions
0:00
1:55 Introductions
3:42 Cringe Questions: “ How can you be sick when you look so good? / How bad can
vasculitis be?”
8:53 Cringe Questions: “ Isn’t vasculitis just a treatable skin disease?” / “Is vasculitis a form of cancer?”
12:41 "Does chemotherapy treatment cause confusion that vasculitis is a form of cancer?"
18:20 "Is it better to call vasculitis an autoimmune disorder?"
19:19 Cringe Questions: “What's the name of that disease you have and what does it do to you?”
27:36 Cringe Questions: “How long will it be for your vasculitis to go away?” / “Is there a
cure for vasculitis?”
30:23 Cringe Question: “Is vasculitis fatal?”
40:28 Cringe Questions: “ Why are you always so tired? Is that part of your illness?” / “ Are you sure you’re not exaggerating your symptoms?”
41:25 Powerful quote: “People with rare diseases don’t fake their symptoms. They fake being well.”
44:11 Dr. Banerjee explains why fatigue is a real and common part of vasculitis.
54:15 Cringe Questions: “Can’t you just eat healthier” / Can't you take Vitamins and eat
healthy to boost your immune system?”
58:58 Cringe Questions: “Why are you still wearing a mask?” / “Are you wearing a mask
because your disease is contagious?”
1:02:04 Cringe Question: “ I didn’t think people of color could get vasculitis.”
VF Patient Roundtable: Dealing with the Vasculitis Cringe Questions