Nothing About Us Without Us: How Patients Can Lead in Healthcare Innovation with Randall Rutta
Join us as we dive deep into a conversation with Randy, a leader at the National Health Council, a century-old organization dedicated to patient-centered healthcare. Learn about the Council’s commitment to involving patients in every stage of health decision-making, from fostering early engagement with patients to promoting an empathy-first approach to healthcare innovation. Discover how this inclusive method brings together nearly 200 national organizations, including the American Cancer Society and the Heart Association, and supports diverse patient groups in contributing to the development of new healthcare solutions. Understand the importance of integrating patient experiences and feedback in innovation processes and how it improves both patient outcomes and healthcare systems. Whether you're a healthcare professional, innovator, or patient advocate, this insightful conversation offers valuable perspectives on creating an equitable and inclusive health system.
For more information about the National Health Council and the resources they provide to patient advocates, be sure to visit https://nationalhealthcouncil.org/
How can medical innovators get involved with the National Health Council?
The NHC welcomes innovators who are passionate about patient-centered approaches and those who want to learn.
Joining the NHC as a member organization, collaborating with our member organizations,
Participate in NHC events like the monthly AI Affinity Group, with past keynote speakers such as Laura Adams, senior advisor to the National Academy of Medicine, Dr. Helen Burstin, CEO to the Council of Medical Specialty Societies, and many other leaders across the Health AI Landscape. The Coalition for Health AI’s CEO, Dr. Brian Anderson will be speaking later this month.
Randy encourages innovators to check out the NHC’s evidence-based and free tools that are available on the NHC’s website, such as the Patient Experience Mapping Toolbox, designed to capture patient experience data holistically throughout the patient disease journey.
Check out the Fair Market Value Calculator which was updated this past July to reflect accurate compensation for patients participating in research such as clinical trials, listening sessions, or 1:1 interviews.
Check out the Value Classroom, which is a comprehensive resource designed to educate patient organizations about patient-centered value assessment. It includes a variety of resources, including glossaries, infographics, and step-by-step guides.
Medical innovators can also partner with the NHC on policy initiatives aimed at improving patient access to the latest innovations. It’s all about building partnerships that are aligned with patient-centered values, and we’re eager to connect with those who want to make a real difference in patients’ lives.
Book Recommendations
Randy offered compelling book recommendations during our conversation:
Algorithmic Inequality: Removing Biases and Improving Data for AI in Healthcare by Damon Davis
Damon’s book examines the potential of AI to revolutionize healthcare by analyzing vast amounts of genetic and medical data, enabling personalized medicine and better outcomes. However, it also warns of the risks of perpetuating biases that could lead to unequal care. A must-read for understanding AI's dual role in health equity. https://amzn.to/40HQ1pe
Searching for Health by Dr. Kapil Parakh
This practical guide helps readers find reliable health information online and work effectively with healthcare providers. Dr. Parakh blends his expertise in medicine and technology to offer clear advice on avoiding misinformation and making informed health decisions. https://amzn.to/4fGFJK5
Dead Wrong: Diagnosing and Treating Healthcare’s Misinformation Illness by Dr. Geeta Nayyar
Dr. Nayyar tackles the dangers of health misinformation, especially in the wake of COVID-19, and provides actionable strategies to combat false narratives. This timely book is essential for anyone concerned about the impact of misinformation on public health. https://amzn.to/3UJXIr9
The Patient Will See You Now by Dr. Eric Topol
This forward-thinking book explores the shift in healthcare towards patient empowerment driven by digital health technologies. It resonates deeply with the NHC’s mission to center patient agency in shaping healthcare innovations. https://amzn.to/3YLvCNl
00:00 Introduction and Welcome
01:58 Overview of the National Health Council
03:28 Patient-Centered Health System
05:05 Early Patient Engagement in Innovation
06:04 Challenges in Healthcare Innovation
07:33 Importance of Patient Perspective
10:25 Case Study: Postnatal Infant Bassinet
13:39 AI and Healthcare Innovation
15:36 Access and Advocacy in Healthcare
16:46 Engaging Patients in the Innovation Process
30:09 Future Role of the National Health Council
33:23 Books and Resources on AI and Healthcare
43:52 Closing Remarks and Call to Action