Making memories with YHA as a MYHRE syndrome family
Making memories with YHA as a MYHRE syndrome family
YHA help create moments and memories that are truly life changing. MYHRE syndrome is an extremely rare genetic disorder caused by a mutation in the SMAD4 gene. Only 60 cases of MYHRE syndrome have been reported worldwide. YHA helped 10 families create lasting memories and connect with each other so they no longer feel alone.
https://getinvolved.yha.org.uk
https://www.yha.org.uk
Videographer & co-editor; Hannah Brochocki