78; Excitement about physical activity; how I survived my son's chemotherapy.
4-25-2018 Great news today! Ben’s appointment went well. None of his tumors have grown. the hydrocephalus is not an issue anymore. His brain is filling in the space left from removing the biggest tumor. So, it was all good news. His spine looks much better, and they will not check that as often- just every 6 months, so that is wonderful. He is so excited he got released back to full physical activity again so he cannot wait to swing high at school and go down a tall slide somewhere.
Thank you all for the prayers and positive thoughts.
Ben was SO excited to be cleared for physical activity. What is your favorite physical activity?
Do you like to dance? Ride your bike?
Swim? Play sports? Hike?
Go bowling? What do you love to DO with your body?
(can you think of 10? Different activities you enjoy)
I LOVE to go to Zumba or group aerobics class, and it is so much fun to dance with the group after multiple knee surgeries I look like a fool trying to dance with straight knees, but the best thing about those types of classes is nobody is looking at me, everybody is just trying their best to do the right moves… so, I can relax and have fun without any fear of judgement or self consciousness… It doesn’t matter if others would say you are “good” at it… but what do you enjoy doing?
What feels good to you?
This is just one of a hundred tools that helped me including:
A: BEFORE DIAGNOSIS
B: Diagnosis and PRE-SURGERY HOSPITAL STAY
C: SURGERY D: RECOVERY in patient
E: At home recovery F. CHEMO
70 I was terrified, and it went wonderfully …
71 life was unfair- understanding & compassion for another
72 EVERYONE HATES CHEMO -
73 Do not despair.
74 Unknowns in the future affect each of us differently.
75 The little surprise blessings make everything manageable.
76 Life is fragile. Create a special moment with a loved one.
77 We cannot be perfect; don’t push yourself past your limits.
78 Excitement about physical activity.
79 Motherhood: HARD uncomfortable and overwhelming.
80 What group could you join for support?
81 Wishes are magical things.
82 Refusing to acknowledge fear only creates more pain.
83 Remembering your best journey can be a nice distraction.
84 What dreams do you have for yourself?
85 hard to watch a little heart break.
86 Feelings can bring our needs to our attention.
87 Anticipating an upcoming trip can give us joy.
88 VIP treatment sure feels good, thank you Make-a-Wish.
89 Worry - listen to your fear and take steps to protect yourself.
90 The resilience of kids is just amazing.
91 Devote time to things that really matter to you.
92 We MAKE time for the things that are truly priorities.
93 Don’t let worry for the future rob TODAY of nice moments.
94 We have help and people on the sidelines cheering us on.
95 The good we throw out in the world always comes back to us.
96 A mom who cares and does her best (not perfection).
G. FAILING CHEMO H. WATCH AND WAIT
I. NEEDING NEW TREATMENT
J. END OF NEW TREATMENT / watch and wait
** Living life one day at a time.
Topics I have thought and talked a lot about over the last few years include:
#momguilt #PediatricBrainTumor #Neurofibramatosis
#Glioma #Astrocytoma #PilocyticAstrocytoma
#BrainTumor #OpticNerveGlioma #PediatricBrainSurgery
#NF1 #ParentingChronicIllness #watchandwait
#copingskills #ChildhoodCancer
#Carboplatin #Vincrystine
#nevergiveup #thereishope #PediatricBrainCancer