Rare Disease Day 2023

Опубликовано: 18 Август 2026
на канале: Sea Sprite Spoonie
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Tuesday February 28th is Rare Disease Day!

There are many ways you can participate in Rare Disease Day and rarediseaseday.org offers a guide on how you can join in!

Through digital down loads, virtual events, lighting up buildings, sharing your stories and so much more.

I’ve started a team called ‘Spoonie Strong’ for the virtual walk that you can join if you’d like to raise awareness together: https://runsignup.com/Race/MD/SilverS...

Team name: Spoonie Strong
Password to join team: onespoonatatime

Would love to have you raise awareness and virtually walk with me! I’ll be doing my walk this weekend and hope you can join in :)

Reach out and let me know all the ways you plan to raise awareness, show your stripes and connect with our community.

Light, love & all the spoons
🙏❤️🥄
Vanessa