Trisomy 13: Hanging out at home with Lyly & Lily || 3 year-old with Trisomy 13 (13トリソミー) (Ep. 2)
We had some nice quality family time on the balcony at home with our son and daughter; Lyly and Lily.
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Lyly is 3 years old, and has Trisomy 13 (patau syndrome), and Lily is a very healthy little 1 year-old girl.
We have lots of nicknames for our kids, some of which you'll notice me use in this video. Lyly's nicknames include (but are not limited to) lychan, lytan, lychama, cham, chamzie, chama,... the list goes on! and Lilys nicknames include litan, lichan, and tansan.. for now!
Our family speaks English & Japanese (we live in Japan), so if you can't quite catch what we're saying, we're probably using the latter!
Thanks so much for watching.
See all my Trisomy videos on my channel:
/ @samuelt13
Please LIKE the video if you would like to see more casual videos like this one. I usually focus on more serious content that times a long time to produce, but I thought I would upload a nice & casual video like this to see if my viewers enjoy it, so please do LIKE it if you do.
{{ Trisomy Parents, Carers & Interested parties - please visit www.livingwithtrisomy13.org
It is a wonderful facebook group full of caring, compassionate, and knowledgeable people with Trisomy 13 children. It is an absolutely invaluable resource that has helped me immensely. }}
Track: Woods
Music composed and recorded by Oak Studios
Creative Commons - Attribution ND 4.0
• [No Copyright Music] Woods - Acoustic Folk...
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