Trisomy 13: MORTALITY || Learning to live with my son's genetic condition ( 13トリソミー ) Patau Syndrome
A video about my son's mortality. Learning to deal with the fact that I will someday have to let my son go.
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(I don't know why but youtube seems to disable comments on random videos on this channel from time to time. I think it's because the videos feature a minor).
The boy shown in this video is my son. His name is Elijah (nickname Lyly). He is 3 years old at the time of making this video, and has Full Trisomy 13 (Patau Syndrome). The videos and pictures shown are from various stages in his life, from the first day of his birth to the present day (actually, there are some ultrasounds from when he was still in the womb too).
See all my Trisomy videos on my channel:
/ @samuelt13
My Trisomy Blog:
www.thetrisomylife.com
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#patau
#patausyndrome
#edwardssyndrome
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0:00 - What is Trisomy 13
0:45 - Diagnosis & Grief
2:15 - The Reality
3:27 - Mortality
4:42 - Moving Forward