Trisomy 13: Being the parent of a Trisomy & healthy child (
A video about my experience as the father of a Trisomy 13 child, and a healthy child. This video is about the guilt I feel when I find myself spending more time with my daughter, than my Trisomy 13 son.
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Become a member on Youtube: / @samuelt13
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My son's name is Lyly. He was born was Full Trisomy 13 (see details on this below).
What is Trisomy 13?
(excerpt from https://medlineplus.gov/)
"Trisomy 13, also called Patau syndrome, is a chromosomal condition associated with severe intellectual disability and physical abnormalities in many parts of the body. Individuals with trisomy 13 often have heart defects, brain or spinal cord abnormalities, very small or poorly developed eyes (microphthalmia), extra fingers or toes, an opening in the lip (a cleft lip) with or without an opening in the roof of the mouth (a cleft palate), and weak muscle tone (hypotonia). Due to the presence of several life-threatening medical problems, many infants with trisomy 13 die within their first days or weeks of life. Only five percent to 10 percent of children with this condition live past their first year."
See all my Trisomy videos on my channel:
/ @samuelt13
My Blog about Trisomy 13 & my son's life:
www.thetrisomylife.com
{{ Trisomy Parents, Carers & Interested parties - please visit www.livingwithtrisomy13.org
It is a wonderful facebook group full of caring, compassionate, and knowledgeable people with Trisomy 13 children. It is an absolutely invaluable resource that has helped me immensely. }}
Music:
Dreamland - Aakash Gandhi (1st track)
Orbit - Corbyn Kites (2nd track)
Sleepy Hollow - E's Jammy Jams (3rd track)
#trisomy13
#trisomy
#13トリソミー
#trisomie
#patau
#patausyndrome
#edwardssyndrome
#トリソミー
#samuelt